Miracle Baby Born With Heart, Intestines Outside Body Thriving After Mom Gives Child Life

ezekiel-nevada-compressedLAS VEGAS, Nev. — A Nevada baby who was born with his heart and intestines outside of his body is beating the odds as he celebrates a year after his mother gave him life.

Last year, Desteny Amaya was informed that her son had a condition called Pentalogy of Cantrell after an abnormality was spotted during an ultrasound. Her doctor, Van Bohman, advised that the baby’s heart and intestines were forming outside of his body.

“Almost universally it’s fatal. These kids never survive; in fact this is the only one I’ve ever seen that has survived,” Bohman told KNSV-TV.

Amaya, when obtaining the news, decided to pray for her son.

“I use to never to believe in hope or God,” she explained to the outlet. “When I prayed for him, it was my first time praying.”

Amaya wanted to give her child life despite the diagnosis, but questioned whether doing so would be selfish. Bohman told her that her desires were okay.

“I was thinking, ‘Am I being selfish for me to want him to be born for him to go through all this?’” Amaya recalled to reporters. “But then I talked to Dr. Bohman and he explained to me it’s not selfish wanting your baby to be here.”

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Bohman began planning for the C-section, and in September 2015, Ezekiel was born. His name means “God strengthens.”

“The skin was open when the baby was born, you could see the heart just sitting there, and the intestines were in a little bit of a sac but the heart was just right there open to the air,” Bohman remembered.

One year and a number of surgeries later, Ezekiel is thriving.

“Is he going to grow up and have a job, and be a father, and have a rewarding life? He will,” Bohman told KNSV-TV. “I think he’s looking really well. There might be some things that need to be tweaked down the road, but right now he’s doing great.”

Ezekiel’s father, David, encouraged others to trust God in their circumstances.

“For everybody that has a baby with a tough situation, don’t give up. Just have faith, and everything will come out good. God has something for you,” he said.

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  • Grace Kim Kwon

    Thank God for His faithful people. Yes, never give up on life. Never. God takes care of His creation till the end. (Romans ch.8)

  • Grace Kim Kwon

    Life has profound meaning:

    “What then shall we say to these things? If God is for us, who can be against us? He who did not spare His own Son, but delivered Him up for us all, how shall He not with Him also freely give us all things? Who shall bring a charge against God’s elect? It is God who justifies. Who is he who condemns? It is Christ who died, and furthermore is also risen, who is even at the right hand of God, who also makes intercession for us.

    Who shall separate us from the love of Christ? Shall tribulation, or distress, or persecution, or famine, or nakedness, or peril, or sword? As it is written: ‘For Your sake we are killed all day long; we are accounted as sheep for the slaughter.’ Yet in all these things we are more than conquerors through Him who loved us. For I am persuaded that neither death nor life, nor angels nor principalities nor powers, nor things present nor things to come, nor height nor depth, nor any other created thing, shall be able to separate us from the love of God which is in Christ Jesus our Lord.” (Romans ch.8)

  • Grace Kim Kwon

    “For I consider that the sufferings of this present time are not worthy to be compared with the glory which shall be revealed in us. For the earnest expectation of the creation eagerly waits for the revealing of the sons of God. For the creation was subjected to futility, not willingly, but because of Him who subjected it in hope; because
    the creation itself also will be delivered from the bondage of
    corruption into the glorious liberty of the children of God.

    For we know that the whole creation groans and labors with birth pangs together until now. Not only that,
    but we also who have the firstfruits of the Spirit, even we ourselves
    groan within ourselves, eagerly waiting for the adoption, the redemption
    of our body. For we were saved in this hope, but hope that is seen is not hope; for why does one still hope for what he sees? But if we hope for what we do not see, we eagerly wait for it with perseverance.” (Romans ch.8)

  • Guest✓ᵛᵉʳᶦᶠᶦᵉᵈ

    Oh, he’s so beautiful! God is good!

  • http://en.wikipedia.org/wiki/Urban_decay James Scott

    It’s hard to believe that god only chooses to save a handful of these fetuses and instead god commands that over a million American fetuses die of natural miscarriages every year.

  • Nidalap

    Another life that would not exist if the pro-abort crowd had their way…

  • http://en.wikipedia.org/wiki/Urban_decay James Scott

    It’s hard to believe that god only chooses to save a handful of these
    fetuses and instead god commands that over a million American fetuses
    die of natural miscarriages every year.

  • uninvitedguest

    This child is alive because of the physicians who saved him, not some mythical supernatural being.